dagblog - Comments for "A Re-cited Friday Afternoon at the Haikulodeon"

Things appear better. it may

MrSmith1 — Wed, 16 Apr 2014 17:59:15 +0000

In reply to I knew all of that; And yet I

Things appear better.
it may be just illusion,
but I'm buying it.

----

Tanka haiku:

For long term illness,
Life on a biologic,
Is no miracle.

It's a reminder of what
might have been, And that's enough.

----

For me, the biologic drug, Remicade, allowed me to continue to work and live a reasonable life without too much inconvenience. (Of course, I am extremely stubborn, so my concept of reasonable may be a bit skewed, but never mind that. LOL)

I was already completely fused for more than a decade when the opportunity to go on Remicade first came along in 2001. It was, at the time, only approved for Rheumatoid Arthritis, but some doctors had begun prescribing it off-label for Spondylitis.

My rheumy was one of those docs and wrote a letter of medical necessity to my health insurance, and because I had tried so many other drugs without any positive results, I was approved. I knew the risks, but I was desperate to find something that would bring my disease activity under control. And it did. Remicade was the first and, so far, only treatment I've used that brought the level of inflammation in my body down to less than 1. Previously, my SED rate hovered around 65, so that's quite a signigicant drop. The fact I went so long on this drug without and major side effects until now is remarkable.

I just wish I didn't have to make the Hobson's choice of continuing to take the Remicade versus having to deal with the serious side effects, which my body now seems to be experiencing... Quality of Life issues. (Sigh) Well, hopefully my visit with my Rheumy tomorrow will help with some perspective
.

----

I knew all of that; And yet I

moat — Wed, 16 Apr 2014 01:53:18 +0000

In reply to Thanks for the tip, moat.

I knew all of that;

And yet I forgot it too.

May your eye be well.

I like how you went from bus stops to wind instruments in the last exchange. Some kind of next thing keeps whispering to me.

Thanks for the tip, moat.

MrSmith1 — Sun, 13 Apr 2014 04:11:27 +0000

In reply to That's how this old man does

Thanks for the tip, moat. I'm afraid tilting my head back has not been an option for me for 25 years. (My neck and spine are fused from Ankylosing Spondylitis.) Add in my blindness in one eye, which took away my depth perception, and it just becomes comical that my face often gets the majority of my eyedrop medicine. :-)

That's how this old man does

moat — Sun, 13 Apr 2014 01:50:57 +0000

In reply to Don't tilt the head back. Lay

That's how this old man does it.

Don't tilt the head back. Lay

moat — Sun, 13 Apr 2014 01:48:18 +0000

In reply to Old men and eye drops; As if

Don't tilt the head back.

Lay down under the dropper.

Use both hands to aim.

Old men and eye drops; As if

MrSmith1 — Sat, 12 Apr 2014 21:43:49 +0000

In reply to A Re-cited Friday Afternoon at the Haikulodeon

Old men and eye drops;
As if we need more proof our
aim ain't what it was.

I hope your vision soon

trkingmomoe — Sat, 12 Apr 2014 01:42:55 +0000

In reply to A Re-cited Friday Afternoon at the Haikulodeon

I hope your vision soon returns. Thank you for this.