dagblog - Comments for "April Fools? No. It’s April Awareness!"

Keeping a sense of humor when

wabby — Sun, 03 Apr 2011 15:58:21 +0000

In reply to April Fools? No. It’s April Awareness!

Keeping a sense of humor when facing a relentless disease is a sanity saver, Mr. Smith....I agree one hundred percent. Whatever gets you through the day, gets you through the day. Or night.

I consider both of these

Richard Day — Sat, 02 Apr 2011 04:52:59 +0000

In reply to April Fools? No. It’s April Awareness!

I consider both of these ladies my friends.

And this turn of events greatly saddens me.

I know of it from being

artappraiser — Fri, 01 Apr 2011 18:32:57 +0000

In reply to April Fools? No. It’s April Awareness!

I know of it from being forced to try to self-diagnose a flurry of MS-like symptoms years back when many specialists I was seeing were more than ueless but screwed me up more (It twas before the internet when you had to go to the medical libraries and spend money you didn't have on expensive books and try to contact others in the same boat via snail mail or the phone. Turns out I just had garden variety super angry screwed up immune system. But even with the poor tools back then, information was healing power. )

Anyhew, I wish you and all Spondys the best in trying to get p.r. and research attention and self help. Can't imagine any better use for this internet thing. Post on it everywhere and screw those who don't like it. Make it a google "trend rising." You go!

Thanks. Right now I am on one

MrSmith1 — Fri, 01 Apr 2011 18:23:00 +0000

In reply to Thanks, Mr. Smith. I'm so

Thanks. Right now I am on one of the 'biologic drugs, Remicade. It has helped me, but unfortunately, it came along about 20 years too late, as all the 'damage' had already done.

And don't worry, I don't suffer. I was born with a seemingly inextinguishable sense of humor and a persistent optimism.

The two things I've found most important in dealing with any chronic disease: 1) retain a sense of humor and 2) maintain a willingness to adapt. Doing that will get you through almost everything.

For us all:

we are stardust — Fri, 01 Apr 2011 14:39:11 +0000

In reply to I don't think I've ever been

For us all:

I don't think I've ever been

Verified Atheist — Fri, 01 Apr 2011 14:16:10 +0000

In reply to Thanks, Mr. Smith. I'm so

I don't think I've ever been in more agreement with stardust.

Thanks, Mr. Smith. I'm so

we are stardust — Fri, 01 Apr 2011 14:03:03 +0000

In reply to April Fools? No. It’s April Awareness!

Thanks, Mr. Smith. I'm so sorry to hear you're in such pain with such immobility. I do wonder if you've looked into Celadrin; it helps some with your condition, apparently.

I know of the disease, but I didn't know it was as prevalent as you say. Lupus is the other vicious one that few know about.

Best to you, and glad to hear you have a humorous blog about the condition. Suffering sucks. Period.